Website
These are the websites I have found to be very helpful
The Negative Space was created when Allison noticed that while the world was rallying around and providing support for her husband through a bone marrow transplant and multiple cancers, there was little recognition of or support for her
Denise focuses on developing and leading training programs for family caregivers, former family caregivers and anyone interested in the personal caregiving experience.
The Well Spouse® Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse or partner. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues “well” spouses face every day
A Better Balance is the leading national nonprofit legal advocacy organization dedicated to work-family justice. We use the power of the law to ensure all workers can care for themselves and their loved ones, without sacrificing their economic security
Rare Patient Voice empowers patients and family caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives
We support individuals living with rare neuroimmune diagnoses and their families, promote awareness to empower patients, families, clinicians and scientists, build a collaborative and dedicated clinical care network and help advance scientific understanding and research.
Their mission is to bring about a dramatic and wide-reaching change in conditions and attitudes for the rare disease community.